The COVID crisis has shown that ethical and effective uses of data and increased sharing of data can save lives and can be critical for society as a whole (by contrast to the use of data made by private entities for commercial purposes that generally draw more – media and policy – attention). Tragically, traditional data governance mechanisms generally do not have an established “crisis mode” switch that can be flipped during a pandemic, natural disaster, cyberattack, or other catastrophe in order to facilitate the use of data for public good. As the world continues to navigate through various crises and increasingly relies on the efficient use of available data and as the push for increased data sharing is growing (at least in Europe), it is crucial for citizens and particularly for the younger generations to proactively engage in shaping and implementing new data governance mechanisms that shall foster altruistic data sharing. New data governance models based on data philanthropy / “data altruism”, on the collectivization of the exercise of data rights and on “data intermediaries”, are envisioned in recent regulatory instruments (the recent EU Data Governance Act - Regulation 2022/868 on European data governance). The future success of these models will of course depend on how they will be practically implemented. Their success will however essentially depend on whether and how people will adopt them, specifically the youth who will be the key providers of data.
Please join Jacques de Werra, law professor and Director of the Digital Law Center (www.digitallawcenter.ch) at the University of Geneva, and Leah Plunkett, faculty at Harvard Law School and Berkman Klein associate with the Youth and Media team, for a dynamic dialogue about the big-picture questions and challenges around data governance and altruistic data sharing models.